Supporting the Cystic Fibrosis Foundation
Our CF connection
Before December 3, 2019, I had only ever heard of cystic fibrosis in my high school biology class. On my daughter’s diagnosis day, I had no idea what this diagnosis would mean for her life. As she grows, I know more and more. We do daily treatments, she takes digestive enzymes with every meal, we add medications as needed, and we are especially careful about germ control. We are lucky that there are many recent advancements for people with CF, and those advancements are largely due to the work of the Cystic Fibrosis Foundation.
What is cystic fibrosis?
Cystic fibrosis is a progressive, genetic disease. It is caused by mutations in the CFTR gene that result in an imbalance of salt in the body, which then causes mucus in the body to be thick and sticky. This mucus clogs the airways and traps germs in the lungs, causing infections, inflammation, respiratory failure, and other problems. The digestive system is also affected as the thick mucus prevents digestive enzymes from being released, which means the body cannot break down fat and absorb all nutrients that it needs. The liver and the reproductive system can also be affected by this disease.
The Cystic Fibrosis Foundation
The Cystic Fibrosis Foundation is the leader in research and development of treatments for people with cystic fibrosis. Since its beginnings in 1955, the work that the CFF funds has helped increase the life expectancy of a person with CF from just single digits to age 50! The foundation is committed to finding therapies, treatments, and a cure for every person with cystic fibrosis.
Our family is greatly impacted by the work that the foundation does. They fund the CF Clinic that we take our daughter to, allowing her to receive care from all of her providers at once and to receive the most updated care in CF. The medications our daughter takes have been developed through funding from the CFF, and discoveries about CF made by the foundation over the years allow our girl to have the best chance at a long, full life.
Thank you for supporting the CFF!
For each Card Kit purchased, we donate $1 to the Cystic Fibrosis Foundation ($.50/kit for Quick Card Kits). Thank you for your contribution to making CF one day stand for Cure Found!
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